Alexis M.
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
- It's ME/CFS Day of Awareness. For 7 years, I've been the full-time caretaker for my bedridden wife: she can't shower, make food, watch TV, speak for more than a few minutes—sometimes can't chew or get to the bathroom. She's trapped, like millions of others—yet ME/CFS research gets almost no funding.
- Solidarity to you and your wife. My husband does so much for me too. Adding your books to my Libby list. The ghost of us sounds like a perfect cozy fall read! 🤍
- NEW: "A palpable disdain for disabled people" #MEAction protestors sent out an urgent "SOS" today in D.C. and online for increased ME funding and to save Medicaid, following Trump Administration assault on ME, Long COVID, and other disabled Americans. thesicktimes.org/2025/05/12/m...
- Thank you for this summary of the day for those of us at home !
- #MillionsMissing 2025 is more dire than ever: tens of millions suffering horrifically w/o treatments, many w/o any meaningful healthcare at all, & a government that strips more funding, policy & protections away each day. #DisabilitySOS #MECFS #LongCovid #MyalgicEncephalomyelitis #pwME
- My poem "Your Pale Gray Eyes" went up at The Literary Underground this morning. It's the first poem I've ever submitted--I've always kept my poetry for myself--so it feels good to see it in print. #BookSky #WriterSky #PoetrySky theliteraryunderground.org/blog/2025/05...
- the f you to Jeff bezos in your bio was an extra nice touch 😆
- A few decades late to the party but I finally read the Bluest Eye. Wow. My favorite part is that there’s a character called the Maginot Line & my second favorite part is everything else
- Sula is also fantastic! I say that bc it’s not as popular as beloved, Song of Solomon, bluest eye etc. Toni Morrison is such a spectacular writer
