Alexis M.
Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
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- Reposted by Alexis M.A House committee is considering a bill today that would cut hundreds of billions in Medicaid funding — harming disabled communities, seniors, kids in schools, and many more. We still have a chance to stop it. Contact your member of Congress NOW and tell them to save Medicaid.
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- #MillionsMissing 2025 is more dire than ever: tens of millions suffering horrifically w/o treatments, many w/o any meaningful healthcare at all, & a government that strips more funding, policy & protections away each day. #DisabilitySOS #MECFS #LongCovid #MyalgicEncephalomyelitis #pwME
- Reposted by Alexis M.The Clinical Care Guide for #MECFS, #LongCOVID & IACCs is here! Download, share, and use it to support better care. BHC's approach is now freely available—designed to help providers manage complex conditions with clarity & compassion. Download it. Share it. Use it. bit.ly/432YdzF
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- Reposted by Alexis M.New preprint from Rob Wüst et al! Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest www.medrxiv.org/content/10.1...
- Reposted by Alexis M.We are fighting for funding for the ME/CFS Research Roadmap. We have a letter urging Dr. Bhattacharya to allocate $50 million to fund the ME/CFS Research Roadmap. Sign our new letter now: bit.ly/MEcfsRoadmap The more signatures we gather, the louder our call for action. #PwME #MECFS #NIH
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- Reposted by Alexis M.1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before. They speak candidly about their experiences youtu.be/J0ywwLIfH_w?...
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- Reposted by Alexis M.You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here: www.meactions.org/millionsmiss... #MEAction will be sounding a Disability SOS at the nation’s capitol and across social media. #PwME
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- Reposted by Alexis M.Excited to share our Opinion piece on "How to Lead a Chronic Disease Revolution" with Harlan Krumholz Hint: study infections & immune responses as a catalyst for chronic diseases like neurodegenerative, autoimmune, cancer, and many more. www.wsj.com/opinion/how-...
- Reposted by Alexis M.A study of masks and respirators confirms, yet again, that earloop KN95/KF94 masks perform similarly to surgical masks. Earloop masks should not be recommended as a substitute for proper headstrap N95 respirators—except for the rare wearer who passes a fit test in them.
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- i’ve reached the part of #chronicillness where most all healthy people seem like straight up aliens 👽 and not in the fun, interesting sort of way
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- Reposted by Alexis M.Some bad news for people living with #MECFS. Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC. I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet. Let's talk about what a passback is, and what it means for us. 🧵🧪
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- Reminder that #coachella livestreams on Youtube for people at home & it’s happening again this weekend April 18-20. (Probably too overstimulating for many of us to watch too long, but it’s great to have the option to see & participate a little bit if able!) www.herzindagi.com/society-cult...
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- Reposted by Alexis M.Breaking news: A new lawsuit seeks to challenge the National Institutes of Health’s decisions to abruptly terminate hundreds of grants, totaling more than $2.4 billion, over the past month. scim.ag/3DZnylL
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- In case anyone else needs this today: the best advice I ever read about #MECFS was “no one else is going to lie in that bed for you.” The decisions, fragile routine, the totally altered perspective on life— they don’t have to make sense to anyone else, bc they don’t have to live w/ the consequences.
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- Reposted by Alexis M.ALA is deeply concerned by reports that IMLS is sending notices to libraries claiming to cancel grants that are required by law. This harmful action will disrupt libraries' ability to serve their communities. Tell Congress to protect library funding: bit.ly/CallCongressForLibraries #ForOurLibraries
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- Reposted by Alexis M.🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision. Exclusive in @thesicktimes.bsky.social thesicktimes.org/2025/03/28/u...
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