A Chronic Voice
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
achronicvoice.com
- “ #Grief is often associated with the sorrow of losing a loved one, but there’s another dimension to it that’s equally profound yet seldom discussed: the grief of losing function, autonomy, and the #future as one envisioned it.": buff.ly/cgXkNGD #ChronicIllness #NEisvoid #disability
- "Indeed, a little white pill doesn’t always magic away the pain that is a constant reality. But there is no pill at all to try and alleviate the continuous crippling #fatigue.": buff.ly/yqqll6q by @serenebutterfly.bsky.social #ChronicPain #ChronicFatigue #BrainFog #ChronicIllness
- ““ #Music is one of the quickest, easiest ways to intervene in our #mood,” Rubin says. A bouncy #song or heavy bass can make all the difference when it’s time to get motivated to move your body.”: buff.ly/z2OLIwo from @bezzycommunity.bsky.social #MentalHealthMatters #listening
- “My line between easy and hard looks drastically different from most of my peers. And unfortunately, it seems to be on the move – sometimes cutting me off when I thought I had a little more time.”: buff.ly/IzDNUtL via lupus .net #ChronicPain #ChronicIllness #lupus #pacing #spoonie
- "To every #caregiver, seek help, seek #support. Build alliances with #teachers and therapists, join #parent groups, connect with other #families. Take your child out into the world and, in doing so, teach others how to embrace differences.": buff.ly/dgZc0DA via @rutgersuniversity.bsky.social
- “One of the biggest hidden cost of having a #disability for myself is having an extra person around. I hadn’t really thought about it in depth until writing this.”: buff.ly/dr8ZrZ1 from @InvisiblyMe #caregivers #HiddenExpenses #ChronicIllness #DisabilitySky
- “While our [#dietary] restrictions & consequences may be more extreme, we knowingly break our own rules from time to time because we're #human. We would also appreciate it if you skipped the #GuiltTrip because we knoooowww.”: buff.ly/9i6QVZn via TheOdyssey #ChronicPain #empathy
- "The reason #SleepTalking is considered abnormal (known to researchers as #parasomnia) is that people who do it tend to be unable to shut the part of the #brain down that paralyzes us during #sleep.": buff.ly/6EoXnL0 by Jenna Zark #SleepDisorder
- " #Success has many different meanings and if you were able to prevent a #migraine for a week when you usually get them, u should be proud of yourself because you are obviously doing something right!": buff.ly/qs444iJ by MyRockinDisabledLife #ChronicPain #PainManagement #spoonies
- “Living with #ChronicIllness changes everything, how you think, how you plan, how safe you feel in your own skin..And it’s not just physical. It messes with your #confidence, your #relationships, & your #MentalHealth.”: buff.ly/xiFCMxZ #ChronicPain By @by @melanyfreytesthrpy.bsky.social
