- A "map" created by NIHR of 639 studies of ME/CFS from January 2018 to May 2023. Concerningly only 11% of studies included people with postexertional malaise. The map of types of studies (7) and goals is quite interesting as is the bias chart (9). meassociation.org.uk/2025/03/nihr...
How on earth do you study it without considering PEM? 🤷♀️- The psychologists who had a near monopoly on ME/CFS for 20 years managed quite well to redefine the condition as “chronic fatigue”. Which was in turn far easier to trivialise and psychologise. So we have a majority of “ME/CFS” studies that are really just studying idiopathic chronic fatigue.
- Goes to show they are still a substantial part of the "research" in ME/CFS and that biological research has barely begun even from 2018 onwards. I tend to ignore all the pyschology and exercise nonsense but I see them more often than the biology papers.Mar 27, 2025 21:54
