The massive, 8.8cm meningeal cyst that caused my sudden paralysis on March 13th, 2025. Grateful for Dr. Frank Feigenbaum who removed it on March 28th, and gave me a chance at recovery. #MeningealCyst #SuddenParalysis #ChronicPain #SemiParesis #RareDisease #Disability

I’m so relieved for you.

11 neurosurgeons locally looked at my scans and said “not it”! The power of Facebook and online communities helped me find the 6 surgeons in the world who do the surgery type I needed! Luckily 4 were in the U.S., including Dr. F (who invented the technique)

Geez, that’s truly horrible, but so glad you found one in the US.

I’m so grateful to the Facebook group. Without it, I’m not sure what would have happened.

I gave up FB for fascism but I surely miss it for things like this.

I have hoped BlueSky might replace the other social medias, but it still largely feels empty compared to the communities I’d built on other platforms (so far). Working on it!

Yes, for me, too. I don’t understand how to find sympatico people here, or even how to just see everyones' posts in a continuous feed, which I would love.