European MS Platform
Advocacy and expertise for over 1 million people living with #MultipleSclerosis and related disorders in Europe.
Join us at the #EMSP2025 Conference in Prague. bit.ly/4gXrVLL
- JUST 2 DAYS TO GO! #EMSP2025 kicks off THIS FRIDAY in Prague This year's focus: prevention with people living with MS at the center of every discussion. Can't attend? Join our LIVESTREAM: bit.ly/4gXrVLL Read our "Nothing About Us Without Us" blog: bit.ly/3EQLcRZ
- Living with Multiple Sclerosis doesn't mean giving up motherhood dreams ✅MS doesn't affect fertility ✅Most MS medications have pregnancy planning protocols Planning a family with MS? Talk to your healthcare team. Check our Essential Guide on Pregnancy with MS👇 #MothersDay
- Our Programme Coordinator, presented our #IMSS Survey findings at the Neurological Congress, Belgium. Key findings: Major gaps in service access across Europe Alignment with WHO health initiatives needed MS Nurses crucial as care coordinators & advocates Learn more- emsp.org/projects/imp...
- Just 2 weeks until #EMSP2025 📅 16-17 May in Prague & Online Join us for expert sessions on #MultipleSclerosis prevention, networking & fun activities! Can't attend in person? Join online: bit.ly/4gXrVLL Read our newsletter for all details: bit.ly/44TYUhe
- We've launched our Scientific Advisory Committee, bringing together Europe's top MS experts to strengthen the scientific foundation of our advocacy work. This accomplished team will ensure our initiatives are evidence-based and truly reflect the needs of people living with #MS
- Join our first Best Practice Series on- Tackling Fatigue in MS 🗓️ Tuesday, April 22 🕝14:30 CEST This session BY nurses, FOR nurses - features creative approaches, remote follow-up strategies & self-monitoring tools to help your MS patients Register now: bit.ly/4lCWTfg
- 📰 EMSP's April Newsletter is here! This month: 🎫2025 Conference updates 🔬Innovative MS initiatives across Europe 🤝Key MS community developments 🦸♀️Inspiring patient stories ▶️Read now: bit.ly/42GNH17 Subscribe for monthly updates straight to your inbox! #MultipleSclerosis
- This week we welcomed, Lydia Makaroff, CEO of MS International Federation, to EMSP. We discussed aligning global & European MS initiatives, the evolving role of patient orgs, and addressing critical healthcare gaps for the MS community. Together, we're stronger for everyone affected by MS!
- Our President, Herbert Temmes, spoke to Touch NEUROLOGY Media ahead of the #EMSP2025 Conference to discuss: ▶️Why prevention matters ▶️ Enhancing patient participation ▶️ Driving policy changes Read the full interview: bit.ly/3XNR98r Register: bit.ly/4gXrVLL
- Let's Talk MS Podcast returns with new hosts, fresh perspectives, and conversations you won't want to miss! Guest lineup & release dates coming soon 👀 Know the perfect guest? Drop names below! #LetsTalkMS #MSCommunity #MSPodcast
- Could prevention be the future of MS care? The #EMSP2025 Conference in Prague is exploring this game-changing possibility. For 1M+ Europeans with MS, this matters. Read our full blogpost to discover more 👇 bit.ly/4j6cQc2 #MSPrevention #MSConference
- Prevention in MS isn't just a dream—it's the next frontier. Watch EMSP VP, Federica Balzani outlining the theme for the upcoming #EMSP2025 conference. Risk factors? Protection? Aging? We're tackling it ALL. Register today👉https://bit.ly/3BmIOAG www.youtube.com/watch?v=q14U... #MSConference
- ⏰ FINAL CALL: Abstract submissions for #EMSP2025 closing soon! Present your #MSResearch on prevention. Accepted posters gain visibility at our Annual Conference. Submission Deadline-Monday, March 24 bit.ly/41J0iS5 #MultipleSclerosis #MSResearch #MSPrevention
- Join us at #EMSP2025 for the launch of the Impact of Multiple Sclerosis Symptoms study - one of the largest patient-reported pan-European MS research initiatives. 📅 May 16 | 13:30-13:55 👤 Speaker: Tommaso Manacorda 📍 Hotel Don Giovanni, Prague Early bird rates ending soon! Register: bit.ly/4gXrVLL
- 🧠 Day 5/5 #BrainWeek: Nadja's story highlights workplace challenges for those with MS. Watch her story: www.youtube.com/watch?v=-Ozx... 💼Check out EMSP's Toolkit for workplace adaptations: buff.ly/u5Qj706 #ChronicIllness #Inclusivity
- @ #BrainWeek Day 4/5: MS & Career Disruption "After my diagnosis, everything changed"-Anne Cathrine abandoned veterinary dreams due to adaptation barriers. Systems should accommodate chronic conditions, not make people feel like burdens. Watch her story: bit.ly/3QqutXH @danafoundation.bsky.social
- 🧠 #BAW2025: AI in MS Care MS patients navigate 4+ providers on average- #IMSS study To tackle the challenge, EMSP partnered on WISDOM to develop AI tools predicting outcomes and connecting health data across providers, improving coordination for better care. www.youtube.com/watch?v=7JTP...
- DEADLINE EXTENDED to March 24, 2025! Submit your abstracts for poster presentations at the #EMSP2025 Annual Conference! Calling all: Researchers Healthcare pros Patient advocates People with MS Share your work at Europe's largest MS event! Visit: bit.ly/41J0iS5
- Shocking @efna.net study: 84% with neurological conditions face stigma, HALF from medical professionals. EMSP is advocating for: Enhanced care access Workplace inclusion Evidence-based progress Our IMSS survey provides first standardised patient evidence across Europe. Learn more: bit.ly/4bo3iX2
- On #WorldDayOfSocialJustice, we're addressing the #MS employment crisis. Only 48% of people with MS in Europe are employed, losing ~18 working years to their condition. We urge collaborative action between EU, governments & employers to create truly inclusive workplaces. #MSInclusiveWorkplace
- Thanks for joining our #MSNursePro webinar with Prof. Giovannoni which explored MS self-management through his innovative MS Selfie Initiative. Thanks to Patrik from our Young People's Network for sharing his journey! More sessions coming soon. #EMSP #MultipleSclerosis
- Announcing: #EMSP2025 Conference on MS and related disorders Research & Care Join Prof. Havrdová, Dr. Stennett, Dr. Woschek as they share groundbreaking approaches to MS prevention, diversity in research & holistic treatment strategies May 16-17, Don Giovanni Hotel Prague Register: bit.ly/4gXrVLL
